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HIV Pioneers

Lives Lost, Careers Changed, and Survival

edited by Wendee M. Wechsberg
foreword by James W. Curran

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A moving collection of firsthand accounts of the HIV epidemic.

Tremendous strides have been made in the prevention and treatment of HIV since the disease first appeared in the 1980s. But because many of the people who studied and battled the virus in those early days are now gone, firsthand accounts are at risk of being lost. In HIV Pioneers, Wendee M. Wechsberg collects 29 "first stories" from the outset of the AIDS epidemic. These moving personal narratives and critical historical essays not only shed light on the experiences of global health pioneers, prominent scientists, and HIV survivors\u2026

A moving collection of firsthand accounts of the HIV epidemic.

Tremendous strides have been made in the prevention and treatment of HIV since the disease first appeared in the 1980s. But because many of the people who studied and battled the virus in those early days are now gone, firsthand accounts are at risk of being lost. In HIV Pioneers, Wendee M. Wechsberg collects 29 "first stories" from the outset of the AIDS epidemic. These moving personal narratives and critical historical essays not only shed light on the experiences of global health pioneers, prominent scientists, and HIV survivors, but also preserve valuable lessons for managing the risk and impact of future epidemics.

With unprecedented access to many key actors in the fight against AIDS and HIV, Wechsberg brings to life the harrowing reality of those early days of the epidemic. The book captures the experiences of those still working diligently and innovatively in the field, elevating the voices of doctors, scientists, and government bureaucrats alongside those of survivors and their loved ones. Focusing on the impact that the epidemic had on careers, pieces also show how governments responded to HIV, how research agendas were developed, and how AIDS service agencies and case management evolved.

Illuminating the multiple facets of the HIV epidemic, both in the United States and across the globe, HIV Pioneers is a touching and inspirational look into the ongoing fight against HIV.

Contributors: Quarraisha Abdool Karim, Salim S. Abdool Karim, Lynda Arnold, Anne Jeanene Bengoa, Robert E. Booth, Barry S. Brown, Thomas Coates, Francine Cournos, James W. Curran, Don C. Des Jarlais, Jeffrey D. Fisher, William A. Fisher, Samuel R. Friedman, Robert C. Gallo, Mary Guinan, Gibbie Harris, Warren W. Hewitt Jr., Susan M. Kegeles, Rayford Kytle, Bishop Stacey S. Latimer, Robert Love, Duane C. McBride, Clyde B. McCoy, Carmen Morris, Willo Pequegnat, Mary Jane Rotheram-Borus, Jeffrey Samet, David Serwadda, Lorraine Sherr, James L. Sorensen, Jack B. Stein, Charles van der Horst, Wendee M. Wechsberg, Wayne Wiebel, William A. Zule

Reviews

Reviews

Anyone interested in science, social history, communicable diseases or epidemiology would benefit from reading this topical, fascinating and inspirational book.

I would recommend this book to anyone with an interest in HIV epidemiology, especially if they are keen to contribute to the broad-based scientific progress and the well-being of the population they are attempting to benefit.

HIV Pioneers provides a critical, multifaceted perspective on many of the ways that the epidemic challenged so many parts of our society. The responses to the epidemic recorded here tell an important story that will be invaluable as we confront future threats. A moving and essential addition to the history of our efforts in confronting the epidemic.

A unique and engaging magnum opus, based on numerous first-hand accounts of the early days of the AIDS epidemic. Wechsberg has assembled many of the key players to create a verbal AIDS quilt, a tapestry rich in poignancy, wisdom, sadness, and hope.

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About

Book Details

Publication Date
Status
Available
Trim Size
6
x
9
Pages
272
ISBN
9781421425726
Illustration Description
4 b&w photos, 5 line drawings
Table of Contents

Foreword, by James W. Curran
Introduction
Patients, Physicians, and Hospitals
The Healer, Dr. Beny Primm: Uncommon Man for Uncommon Times
"That AZT Kills Patients": Learning from Lamar—A 25-Year-Long

Foreword, by James W. Curran
Introduction
Patients, Physicians, and Hospitals
The Healer, Dr. Beny Primm: Uncommon Man for Uncommon Times
"That AZT Kills Patients": Learning from Lamar—A 25-Year-Long Patient-Doctor Relationship
Unmoored
Yet Another Stigma: HIV Strikes People with Severe Mental Illness
AIDS Case Management: A Community Response
Women and Pioneering Women
Cherchez la Femme: Yes, the French Woman Did It. She Discovered the AIDS Virus.
The Needlestick Accident That Launched Healthcare Worker Safety: A Nurse's HIV Journey
HIV Takes Center Stage
"Don't Die of Ignorance": A Scramble for Knowledge
Methadone Treatment, Jessie Helms, and Reaching Women Who Use Drugs
South Africa's Response to AIDS and Preventing HIV in Young Women
Survivors
Finding the Black Church in the Fight to End AIDS: My Story
Finding My Calling in Hell: My Journey Through the Early Years of AIDS
What Did You Learn, Dorothy?
Once a Garden, Now a Wildflower
Personal Turning Points
Baltimore's HERO
But You're Not Part of Our Community
The Accidental Ethnographer
People Who Use Drugs
GRID: Gay-Related Immune Deficiency
Stories and Lessons Learned Surrounding People Who Inject Drugs: The Early Days of the HIV/AIDS Epidemic
Encounter With the Dark Side
Junkiebonden and Users' Groups: Learning About the Collective Organization of People Who Use Drugs
Social and Behavioral Science
We're From the Government and We're Here to Help You
First AIDS Grant, First Interviews with AIDS Patients, First Syringe Exchange Politics, First Syringe Research
The Development, Testing, and Implementation of an Information-Motivation-Behavioral Skills Model for the Prediction and Promotion of HIV/AIDS Preventive Behavior
Out of Suffering: New Directions in AIDS Behavioral Prevention Research From a Personal Perspective
From the Many One: A Collaborative Approach
Historical Perspectives
The Beginning of Science in the HIV Epidemic: Eureka Moments
"Slim Disease": A New Health Scare in Uganda
Afterword
Contributors
Index
Index

Author Bios
Featured Contributor

Wendee M. Wechsberg, PhD

Wendee M. Wechsberg is the director and principal researcher of the Substance Use, Gender, and Applied Research Program at RTI International, where she is also the founding director of the Global Gender Center. She is the editor of Prevention Issues for Women’s Health in the New Millennium.