Caring for Children Who Have Severe Neurological Impairment

Caring for Children Who Have Severe Neurological Impairment... is the only book that has even made an attempt to tackle this difficult topic in any meaningful sort of way. The author has succeeded in creating what should become the caregiving Bible for any family of a child with severe neurological impairment regardless of diagnosis, or any medical provider for this population... The information provided, and the approaches recommended, are too important to be overlooked... Caring for Children Who Have Severe Neurological Impairment: A Life with Grace is highly recommended and should be on the bookshelf of every parent dealing with complex medical issues.

For the health-care professional who provides care or interaction at any level to SNI patients, this books is a valuable resource. This is also a great resource to refer to family members and care givers. It helps with understanding and assists with developing questions for the health-care team. The family members reading this book will increase their abilities to advocate for their child's medical, social, and emotional needs. It provides tools and information that promotes dignity and respect for life in all its phases.

Julie’s compassion for the struggles of families with children who have SNI and her concern for the quality of life of every patient who has SNI comes through. She conquers the complexity of combining all aspects of care—pain, GI, respiratory, spasticity, seizures, medications, end-of-life issues, and more—for patients who have SNI at all levels of involvement. Complex care issues combined with optimal quality of life information makes this a must-read for caregivers of those who have SNI—parents and clinicians alike.