Description
This landmark volume is the first to trace the exciting developments in the field of dwarfism research and treatment over the past century—particularly during the past fifty years. Dr. Betty M. Adelson, a psychologist, has unearthed and synthesized the most significant information about dwarfing conditions, from articles written a century ago to current books and specialized databases.
Highlighting the outstanding contributions of Dr. Victor McKusick and several of his colleagues, Dr. Adelson reveals how dwarfism specialists have helped redefine the nature of medical care—transforming it from an authoritarian enterprise into a holistic, collaborative venture among physicians, affected individuals, and their families.
The parent of an adult dwarf daughter, Adelson examines the social forces that affect the dwarfism community. She offers personal descriptions of the day-to-day challenges dwarf individuals face and portrays their accomplishments. Insightful and accessible, this work will prove a valuable resource for affected individuals, their families, and medical professionals—physicians, nurses, genetic counselors, social workers, psychologists, and medical students.Reviews
"A great leap forward for the social and cultural condition of dwarfism."—Andrew Solomon, author of The Noonday Demon: An Atlas of Depression, Newsday"Adelson presents tactful techniques and definite guidance, including what not to do."—Michael A. Schmidt, MD, PhD, JAMA "Identifies the personal and intimate relationship between medical practice and those who have been affected by various types of dwarfism. The author explores both the problems faced and the progress made in the development of scientific and medical aspects, as well as the personal struggles and achievements of those who have these rare conditions. An excellent study."—Charles I. Scott, M.D., Alfred I. DuPont Hospital for Children, Nemours Foundation "This book is extraordinary. It goes beyond descriptive listings of dwarfism diagnoses, treatments, and organizations to provide personal profiles and divergent opinions of doctors, dwarfs, and parents throughout the world and through the ages. The comprehensive research presents medical and social issues that excite and dismay. It stimulates the desire to read every word and to continue the search for answers to the questions that remain unanswered."—C. Angela Van Etten, Little People of America; author of Dwarfs Don't Live in Doll Houses "One of the best, most thorough overviews published on dwarfism and related topics."—Gad B. Kletter, M.D., New England Journal of Medicine "I strongly recommend this book: its insights are unique, and it should prove of value to affected individuals, their families, and the healthcare professionals participating in their care."—David E. Sandberg, American Journal of Human Biology
Author Information
Betty M. Adelson spent most of her career as a psychologist in private practice. She was formerly on the counseling staffs of Queens College and New York University's School of Education. She is the author of a cultural history, The Lives of Dwarfs: Their Journey from Public Curiosity toward Social Liberation.
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